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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
Brain Tumor | Last Active: 9 hours ago | Replies (524)Comment receiving replies
Yes I just had surgery to remove my acoustic neuroma and wish I had gone to Mayo Clinic Rochester from the beginning. They would have preserved the hearing I still had. To everyone of you Reach out to Mayo Clinic in Rochester Minnesota. They have something brand new. It is amazing! You can preserve your hearing and that is their goal their. They do more of these operations than anyone and everyone is try to come up to where they are at currently. Write to Dr. Matthew Carlson. Tell him you want to get rid of the tumor now why it’s small and preserve your hearing. If you wait you face balance and cross over hearing aids. You want a company that sells the FM boot or your active life’s become inactive. The worst part is when you ask people to please repeat something for the 3rd time and the say it wasn’t important. It was to you! That’s why you want it repeated. You ask people to slow down and speak clearer for you and they don’t. You set up classes for your family to learn how to include you with your hearing loss but they never come. They think it’s just your problem but now everyone needs to take in to account you can’t hear. I was down to 45% hearing loss out of my good ear. Insurance companies won’t pay for a cochlear nerve implant unless you are below 50% in your hearing ear. So you are smart to remove the tumor before you lose your hearing. I lost mine in 6 months. Anyone else
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In response to waiting. I was told we would wait and see. My husband is handicapped and I put myself and my health aside. I didn't have my MRI due to caring for him and his health failing. By waiting and not getting it checked my AN grew beyond radiation as a treatment. The best I could do was to have surgery. My husband passed away and then I had the surgery. I lost my ability to swallow and couldn't pass the swallowing test at the hospital. Couldn't even do the test where a camera was put down my throat to see why I couldn't swallow. I had to have all my food pureed for over a month. My insurance wouldn't cover the Speech therapy unless I had had a stroke. Determination made me learn how to swallow. Thankfully I had no facial paralysis. I lost complete hearing in my right ear. I bought the cross over hearing aides. It can be very frustrating to not know where the noise is coming from. Dizziness and Balance are a daily struggle. It's been a year since my surgery. I recently had a sharp pain behind my ear along with tenderness still behind my ear. The pain had made me nauseous and left about 30 minutes after it came. The barometric pressure in the weather really causes a lot of dizziness. Moving too fast or bending down and getting up fast can bring on the dizziness. I've heard people on this board talk about how great they feel. I hope in time these symptoms subside some. Anyone else on the board deal with headaches?I'm so glad for this group. It helps me to know other people are experiencing these things and maybe I can help them like others have helped me.Wishing healthy days for all.