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@kkkk

I have been losing hearing in my right ear very gradually over many years. When I mentioned it to my ENT doctor as I was getting two thyroid nodules examined and needle biopsied (which were small and benign), he had me take a hearing test, then sent me for my first MRI because of the auditory test result pattern. I have a small acoustic neuroma 5 x 11 mm. That was about 3 or 4 years ago. Almost a year later, I had another brain MRI, again without and with shot and was told it had not grown and I could wait 2 years before getting a 3rd MRI and thyroid sonogram, which are due this spring. I do not, so far, have other really noticeable problems, except ringing and clicking in my ear and, maybe, sometimes a few balance problems when turning or bending fast or walking in the dark. If the acoustic neuroma causes worse problems and grows too large, I will have to have radiation. These days, the choices are observation, surgery, or radiation. Since I am now 71, the ENT thinks observation of the small tumor is best, and then radiation, if needed. Also, I have been dealing with annoying irritable bowel and refux for several years, too. Hopefully, by the the time I need the AN treated, better treatments will become available. Right now, I am hoping it does not grow. Good luck with your AN journey! Everyone has different circumstances. Hope my story helps you decide what to do and helps ease your mind somewhat. .

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Replies to "I have been losing hearing in my right ear very gradually over many years. When I..."

@kkkk - thanks for sharing that. I definitely feel more comfortable knowing that others are simply monitoring rather than treating. I'm not typically a wait and watch kind of person so that was difficult for me to get behind. Sorry about the other issues you are having to deal with. My group has done quite a bit of GI research dealing with IBS and GERD over the years so I know how stressful those things can be for patients. Best of luck to you!

@kkkk your thyroid nodules are caused from your acoustic neuroma. I know because mine caused hypothyroidism. It’s common. It also causes neuropathy. The longer you have it the more problems you could have. As for what they are doing Mayo Clinic in Rochester Minnesota is doing some ground breaking work that’s amazing. It’s worth going and talk to them. Do you have a heart condition

I went to Mayo for what I thought was vertigo, they did a hearing test and I was told by the doctor I had a tumor and needed a MRI. I can't have MRI's due to a metal implant in my body so they did a cat scan. I was told it was normal, however I just recently started having some light vertigo. I'm a flight attendant so even slight vertigo can have an impact but also flying can cause vertigo. So my question was was the cat scan as effective as a MRI and could they have missed ti?