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Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (107)Comment receiving replies
Dear stevestenberg31,
I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with similar symptoms/side effects, but only on the day of inj and maybe 1-2 days after. Sharp pain( cramps), nausea, vomiting. Then all is well until next time.
But my ChG A went from 182 after surgery to 56 at the second injection!
take zofran (ondansetron) right before inj. Crackers and swiss cheese saved me.
Keep fighting! And may God help us all!
Replies to "Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with..."
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@pavlina60 crackers and cheese may seem like a small suggestion, but it helps me! Also drink small amount of apple juice if I have not started vomiting.