← Return to Two weeks in, frightened by meds, PMR and COVID Booster Shot

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@nogulewicz

I’m so sorry for your chain of events. I can relate, as I developed GCA in November 2022 shortly after getting a flu vaccine . Immediately was put on steroids, and everything went wrong from that point on. I feel that I became toxic by the steroid. developed upper respiratory in early February, Covid in March , administered Paxlovid (5days) and ER admit 12 days after Covid for CHF! What a roller coaster. Over 60+ and have never experienced such a distressing situation. I hear you when you say that this now becomes long term….that we now must treat with very serious medications that cause so many more health issues. Where’s the answer?? Drs. are as baffled as to where these once “rare” autoimmune diseases are coming from. I agree that the vaccines are to blame! What a travesty!! We all suffer…

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Replies to "I’m so sorry for your chain of events. I can relate, as I developed GCA in..."

Oh my gosh, i sure hope all of that is behind you. You are right there gets to be so many other side issues to deal when you have these diseases. Let's hope for moving forward and remission!!!

Best of luck with the internist. You have been on prednisone for a short time so maybe it is better not to worry too much, yet?
It is possible that vaccines lead to PMR - long term studies will have to be done to confirm this. One interesting and shocking experience in our family occurred several weeks ago involving our grandson, who developed Kawasaki’s disease, an auto immune disorder (in under six year olds) resulting in inflammation of the liver, kidneys and spleen, with the biggest concern being heart aneurism. Won’t go on here- much research is available but treatment is with IVIG and must take place within ten days of onset. Anyhow, he is now part of an international study because there is concern that cases are rising, usually two months post COVID. A similar condition called MIS-C definitely seems to be on the rise in children and also post COVID. What I am trying to say is maybe many paths lead to PMR, which many suspect is triggered by a virus. I do wish tho, that the cure could be a seven hour IV with IVIG. In Fact, I wonder if any studies have been done using immunoglobulin for PMR? Any researchers/docs /rheumatologist with info?