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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 days ago | Replies (224)Comment receiving replies
Hello @elwooodsdad, I was treated for Lymphoma at the age of 62, five years ago. I had several different regimes of chemo which all failed prior to undergoing Car T therapy. As this therapy was not available where I live, I had to go away to receive it, we had to travel 400 miles. I was away for 6 weeks as you indicate. The side effects of receiving the treatment are wide ranging however my experience is that they were acceptable. I had many of the side effects post infusion such as cykotine release syndrome and a high fever.
The therapy worked very quickly in my case as 90 days post treatment, scans displayed no cancer present.
I would advise you to get proper accurate information on Car T from your health providers as that is always the best source of accurate information.
If you questions about my experience with Car T, please ask, I am happy to share.
How far away do you reside from a facility that provides Car-T?
Replies to "Hello @elwooodsdad, I was treated for Lymphoma at the age of 62, five years ago. I..."
Bob,
Thanks for the note and update. The University of Oklahoma is about 100 miles away, and I know couple of people there who could be of help. I had a rather involved tumor removal at age 10 at Mayo, and it has served me well. I'm crowding 76 and still have similar misgivings which I had at age 10. I'm planning to make contact with the necessary players and see what the math problem looks like. Dealing with quarterbacking your own treatment plan, guesstimating the possible cost, etc...I'm going to ask for illumination by their social work committee at both places. They have likely already worked the problem.
Have a nice evening,
Bruce
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The things I read about CAR T frankly scares hell out of me. I am pondering a clinic 100 miles away, but my first choice is Mayo. Pleased your experience was positive. I’m closing in on 76, and concerned my audition may not pass muster. I appreciate your time, thoughts and consideration. Heck, I’m scared to death, and thought my cancer provider was full service. Grrrr