I am 75+ years old, and have Non Hodgkin’s lymphoma. I was diagnosed last fall, and have had six infusions of RChop therapy. After the third infusion the PET scan showed the issues appeared to have been resolved. After the sixth infusion, the PET scan showed a the lesions were back. My oncologist said he had never seen a turnaround such as this. There are some maintenance infusions we will be discussing. I am getting weaker, but no pain, just frightened. The topic of CAR T therapy is also on the table, which would be done away from home and require an extended stay of several weeks.

The reading I have done on CAR T, makes it sound draconian. I haven’t been examined by Mayo or another clinic, and I question whether or not I’ll be deemed an acceptable candidate, but I am curious as to the experience of those having had this treatment. The reading I have done (Bless God and Google) does not give much comfort. I realize much of what is in the public domain was drafted by attorneys concerned about liability. Can someone toss me a rope?
Many thanks,