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Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

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@triblecane

I have been diagnosed with crescentic fibrillary glomerulonephritis and I am looking for any information about it. Doctors are telling me I am going to have to go on dialysis. I am also wondering if I would be eligible for a kidney transplant at age 64.

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Replies to "I have been diagnosed with crescentic fibrillary glomerulonephritis and I am looking for any information about..."

@triblecane Welcome to Mayo Clinic Connect. Having been told you have a rare kidney concern can be very concerning, I know. In 2015 I was formally diagnosed with an ultra-rare autoimmune kidney disorder, myself.

You do not mention how the doctors determined this condition. was it through a kidney biopsy? Also of importance right now is your eGFR [estimated glomular filtration rate] and creatinine level. As to your question about a kidney transplant, recipients can be up into their 70s! Criteria is based more on overall health, not a specific age.

Here is what Mayo Clinic has to say about glomerulonephritis: https://www.mayoclinic.org/diseases-conditions/glomerulonephritis/symptoms-causes/syc-20355705

And from rarediseases.org is this article: https://rarediseases.org/rare-diseases/fibrillary-glomerulonephritis/

Note the crescentric feature of what your doctors are telling you, is a location where the strands are placed.

Dialysis may be required if your kidneys are not able to handle disposing of waste product each day. That's why I was asking about your current kidney function level, expressed as the eGFR number.

Does this help you? What further questions do you have?
Ginger