Initial consultation at a Mayo Clinic

Thank you all for sharing your stories about applying to Mayo Clinic.
I have tried too. See below.

Our Opportunity - Hope
Mayo Clinic seizing its opportunity to:
--- Provide leadership for our healthcare system.
--- Help everyone in the system think about the kind of healthcare system we should create for future generations and start changing what we have today.

There is a critical/urgent need for leadership and management of collaborative communication between providers in the healthcare system.
Check out:
- The percentage of physicians in US expressing professional burnout -- Is it 60%?
- The comments made on Mayo Connect - Neuropathy Discussion:
-- Hope - Healing Our Healthcare System for the People's Sake
-- Call for Mayo Clinic Leadership in Healthcare for Neuropathy
-- Collaborative communication between and care by healthcare providers

Applying to Mayo Clinic
Fist of this year, on 2 occasions, I reached out to Mayo Clinic.
I included -- "I need help. I find myself managing my care and multiple providers. Trying to help multiple providers collaborate in helping me prevent stroke and heart attack and overcoming peripheral neuropathy."

Mayo Clinic responded by:
1. Telling me to work with my local providers (who do not collaboratively communicate) - Not good,
2. Encouraging me to join Mayo Connect - Good.

My reason for reaching out to Mayo Clinic was the realization that my local providers (PC Physician, Neurologist, and Cardiologist) do not collaboratively communicate.
(Now I understand they may not be trained in and have time for authentic collaboration.)

Collaboratively communicate about my atherosclerosis (diagnosed 9/2022), the role of Statins in my peripheral neuropathy, and the harm (extreme fatigue) caused by introduction of a new blood pressure medication - Nebivolo.

Last November, I had to go to an emergency room because of extreme fatigue and numbness in my feet and legs.
The ER doctor told me to tell my doctor (I had to facilitate the communication) to stop the Nebivolo and use previous medication. I did, and my cardiologist changed my medication back to Licinopril.

The story continues, as I continually have to help providers communicate about my health.
A process that is not healthy for me.

I do see opportunity for significant improvement in the use of technology to help providers communicate collaboratively and effectively. Not be a bother to them.

Thank you all again!!

Well said. I have been on Statins for 30 years and got this hideous disease about 4 years ago. Nobody has any answers and I mean nobody. Its extremely frustrating and I'm angry about it.
I have tried everything. I have a lot of pain in my feet and finally got medical Cannabis for sleeping and I use Tramadol for the pain during the day. Hard to even get Tramadol because doctors are afraid to prescribe it. No one seems to understand this or even seem to care. Shameful!

I only had an EMG so far. I was referred back to the MD that did my EMG ,by my PCP, for follow-up care..
My sister has idiopathic neuropathy. She had an appointment at Mayo in Rochester back in 2016.
She has been my support and biggest advocate! She has pushed me to have the referral in the first place. I will keep all posted on my progress if it is ok to do so.
Pat

I’ve had PN since taking Velcade in 2019. Been on Gabapentin, Cymbalta and several supplements over the years. What worked for me is hydrotherapy. Immerse your feet in very hot water for maybe a minute, then ice water. Continue for about 30 minutes. I still have some PN but it helped immensely.

I was told that immersing feet in hot water temporarily relieves the nerve pain because it depletes the nerve cells of the neurotransmitters that serve as pain signals. But one has to be careful not to burn the skin, especially if feet are numb. I have been using 5% lidocaine patches on my feet at night instead.

I was told that immersing feet in hot water temporarily relieves the nerve pain because it depletes the nerve cells of the neurotransmitters that serve as pain signals. But one has to be careful not to burn the skin, especially if feet are numb. I have been using 5% lidocaine patches on my feet at night instead.

Well said. I have been on Statins for 30 years and got this hideous disease about 4 years ago. Nobody has any answers and I mean nobody. Its extremely frustrating and I'm angry about it.
I have tried everything. I have a lot of pain in my feet and finally got medical Cannabis for sleeping and I use Tramadol for the pain during the day. Hard to even get Tramadol because doctors are afraid to prescribe it. No one seems to understand this or even seem to care. Shameful!