1. < Prostate Cancer

Great results with Zytiga and Eligard want to put off radiation.

Posted by pianoman @philipbrachko, Apr 16, 2023

I was diagnosed with regional metastatic PC last summer, was put on Zytiga for 6 months and I am still on Eligard. PSA has been

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spryguy | @spryguy | Apr 17, 2023

I started IMRT watching my diet. As time went on I would occasionally eat foods that were not advised and toward the end of the 39 sessions I was eating anything I wanted in moderation. I even had pizza and beer once. No ill effects.
My treatment plan going forward is 16 mos of ADT (zytiga prednisone and eligard). In Sept of 2024 all meds to be withdrawn and PSA test every 3 mos.. IF (when) PSA increases to > 0.4 ng/ml. I expect a PSMA pet/ct scan to show some specific locations of recurrence . Those areas can then be treated by the appropriate therapy and then perhaps ADT again.
"Rinse and repeat" until something else takes me out.
"Such is Life"

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1 reply
proftom2 | @proftom2 | Apr 18, 2023
In reply to @kchris5174 "Please resend although most of us got the gist. I, too, have been on Abiraterone (generic..." + (show)
@kchris5174

Please resend although most of us got the gist. I, too, have been on Abiraterone (generic Zytiga) and Eligard for about a year and don’t really see an end. But, the cancer is “asleep” per the Oncologist. My mission is to avoid waking it up since 90% of cancer deaths are from cancers that were previously “dormant”, per an article that I once read. My other mission is to enjoy life to its fullest for as long as I can.

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Wonderful description. We are both on the same path and mission. Thank your oncologist for the "asleep" analogy; it brought me instant joy.

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pianoman | @philipbrachko | Apr 18, 2023
In reply to @spryguy "I started IMRT watching my diet. As time went on I would occasionally eat foods that..." + (show)
@spryguy

I started IMRT watching my diet. As time went on I would occasionally eat foods that were not advised and toward the end of the 39 sessions I was eating anything I wanted in moderation. I even had pizza and beer once. No ill effects.
My treatment plan going forward is 16 mos of ADT (zytiga prednisone and eligard). In Sept of 2024 all meds to be withdrawn and PSA test every 3 mos.. IF (when) PSA increases to > 0.4 ng/ml. I expect a PSMA pet/ct scan to show some specific locations of recurrence . Those areas can then be treated by the appropriate therapy and then perhaps ADT again.
"Rinse and repeat" until something else takes me out.
"Such is Life"

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Thanks for the details. I think the rinse and repeat is what I’m not looking forward to. Probably why I’d like to put off radiation until he can see something to target. With my PSA

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1 reply
pianoman | @philipbrachko | Apr 18, 2023
In reply to @philipbrachko "Thanks for the details. I think the rinse and repeat is what I’m not looking forward..." + (show)
@philipbrachko

Thanks for the details. I think the rinse and repeat is what I’m not looking forward to. Probably why I’d like to put off radiation until he can see something to target. With my PSA

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Cont. PSA is

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sam60 | @sam60 | Apr 18, 2023
In reply to @philipbrachko "My side effects are nothing except muscle atrophy, loss of strength and sex drive. I'm 73..." + (show)
@philipbrachko

My side effects are nothing except muscle atrophy, loss of strength and sex drive. I'm 73 have been working out since I was 7yr old. Still working out but strength is down 40%. PSA

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How low is your testosterone?

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1 reply
pianoman | @philipbrachko | Apr 19, 2023
In reply to @sam60 "How low is your testosterone?" + (show)
@sam60

How low is your testosterone?

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Testosterone and PSA is so low it can't be measured. Lost 10 lbs. of muscle in a year. No big deal. Interestingly the ADT has no effect on me aerobically.

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jibway | @jibway | Apr 22, 2023
In reply to @spryguy "I see a red flag as well. Is it possible for you to get a PSMA..." + (show)
@spryguy

I see a red flag as well. Is it possible for you to get a PSMA Pet/Ct?. That should help define the very small PCa cells running around. The Docs would then have a target(s) to shoot at. I did have IMRT that appears to have been successful based on a PSMA PET/CT. My starting PSA was 80+ 8 mos later is undetectable. 75 Yrs and trying one day at a time.
Wish I had more insight into your situation. It's tough not knowing .
Good Luck

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Did you do the hormone treatment before any radiation?

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2 replies
jibway | @jibway | Apr 22, 2023
In reply to @jibway "Did you do the hormone treatment before any radiation?" + (show)
@jibway

Did you do the hormone treatment before any radiation?

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First they said hormone treatment alone, now they are saying both at the same time?

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1 reply
jibway | @jibway | Apr 22, 2023
In reply to @jibway "First they said hormone treatment alone, now they are saying both at the same time?" + (show)
@jibway

First they said hormone treatment alone, now they are saying both at the same time?

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It would seem to me to see how hormone treatment Eligard 45 mg 6 month dose would work, tumor still contained in my husband’s prostate, he is 80, before beginning radiation??? Just wonder. All new to us.
Thank you

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1 reply
spryguy | @spryguy | Apr 22, 2023
In reply to @jibway "Did you do the hormone treatment before any radiation?" + (show)
@jibway

Did you do the hormone treatment before any radiation?

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Yes. Lupron 45 mg on March 23 2022. Started IMRT on May 11, 2022.
Good Luck..

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