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DiscussionNew diagnosis of NET: What should I know and do to plan?
Neuroendocrine Tumors (NETs) | Last Active: May 4, 2023 | Replies (26)Comment receiving replies
Replies to "I’m so happy you are recovering so well. I hope to have the same good recovery...."
I have a NET in the rare location of my breast, so I empathize. Much of the world is out of our control but as you probably already know--our attitude is under our control. I learned this in part from philosopher Victor Frankel--and he was in Auschwitz and had lost his family. As a doctor, he turned down the chance to escape because he wanted to stay with his patients. And he survived. I think your toughness of mind will serve you well, but my only advice is to focus on yourself and not on outcome. Outcome is more in G-d's hands...or for a less religious person--based on chance or fate. Wishing you all the best. I'll add that the 8 months since my diagnosis have been challenging but also full of richness, connection, and even fun.
Michelle,
I am glad that you have a great team of Doctors surrounding you! Having confidence in your team is so important. It is hard to not be in control, especially of our own bodies. This was my first major surgery. I found placing myself in Gods hand was all that I could do….
To answer your questions; At the time of surgery my Surgeon told me that I had a 50/50 chance of losing my spleen. (I had prepared by getting the required immunizations needed) Luckily, he was able to spare the spleen so I was very happy about that! I didn’t/don’t require digestive enzymes or any diet modifications .(You will most likely be directed to keep to a low fiber diet for 2 weeks post surgery.) However, after that period of time I rapidly resumed my normal diet. I haven’t had trouble at all in the digestive department luckily!!!
I smiled when you said you distract yourself by walking the dog and cleaning, those are my go to coping distractions as well!
Take Care, and God Bless!