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Nerve damage and pain that isn’t neuropathy but feels like it.
Neuropathy | Last Active: May 18, 2023 | Replies (33)Comment receiving replies
Hello again and thank you for your reply and the picture included! It will be most helpful 🙂
Sometimes I feel that the diagnosis of neuropathy causes great stress and confusion to the physicians who are treating us. It’s such a vague area of medicine with no clear definitive answers.
I did have an EMG last year that showed that I have moderate to severe axonal distal polyneuropathy
My neurologist told me at that time that my symptoms wouldn’t worsen or go above my knees, and to put on a pair of high top boots and practice driving in a parking lot with my husband in the car.
Well I did just that, although my driving skills
are not the problem, it’s the loss of being able to feel the pedals!
I have seen two neurosurgeons who both said that surgery would not be advised after reviewing my mri.
My CRP and Sed rate are both normal.
The new joint and muscle pain is a mystery to me .
Came on quickly about a month ago. I still have it along with the constant numbness in my feet and ankles.
I’m sorry for all of your troubles , surgery is no picnic !
And to have this curse on top of everything else just doesn’t seem fair.
I choose not to take any prescription medicine for this as I just think it’s a slippery slope, and from what I’ve read from others experience , it’s not effective anyway.
For me, walking daily
even if only for a short distance , really helps in so many ways.
Being in pain all the time
is no fun, especially when no one can give you a reason for the pain.
I’m going to send you something that I received from a friend . Be well.
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Good Morning @jalcorn
Thank you for that write on having Hope. It is so true. Without it where would any of us be? Would not want to even think about that.
No problem and you are welcome 😊
I hear you. I thought to try to drive in a parking lot. But when my eyes crossed for 7 seconds three times in January it has me unnerved. I worry if I were on the road I’d definitely get into an accident if that happened while i drove. So, until I’m sort of “fixed” I’m not to drive.
Last night was a bad time. I had swelling and pain in feet and calf left. The calf was rock hard. Unnerving. So I elevated it and applied ice and took tylenol. The swelling came down some today. I can’t do much on my feet. I applied lidocaine across the bottoms of feet with a qtip. The pain was excruciating. I had to write the neuromuscular doctor because the tightness/spasm is “moving”. Before it stayed in the feet. Now its moved to the calf.
Its scary.
I think you are amazing to not take meds. I am on enough to choke a horse. It has all done a number on my liver. I’m afraid any med they will want to put me on will put me in liver failure. But, I “hope” that does not happen and hope I can eventually in time come down off some meds. If I did not take my meds I’d not be here.
I wish i could walk. When I do the feet just are worse. I have spasm on the bottom and side of feet so it feels like I’m walking on rocks and stung by fire ants. The lidocaine and ice is helping. As I type i am resting foot on ice. All I can say is…Ahhhh. Lol
Thank you for sharing your comforting thoughts. I appreciate it and wish you wellness also!
☀️ 🙏🏻 😊