Bon,
I have allergic to 19 different meds. I have had antiphylactic shock, and am nervous to take anything. Then I had my first 2 mycrobacteria infections, I did them at home. IVs done myself, through a pic line, then a port, twice a day, for 9 months, 3 times a week, I also took 3 oral meds for 18 months. Scared? Yes. I did all the first IV and the first pills at the hospital. I was at NJH, so that made it better. But Im sure your dr. would let you do the same. I was also on ativan.
Now, years later, I have MAC. No meds yet, but Ive been on inhaled Tobi often. I have panic without the med now. I go to therapy. My heart has problems, and the constant anxiety and panic make heart issues worse, and pressure go through roof.
I'm not pushing anti anxiety drugs to anyone. That said, I could not have done any of this without them. They arent for everyone, and they can be addicting. I have tapered off twice. Something comes up, and I am back on them. Only small dose to calm me down.
Fear is a real thing, but without the drugs for these mycrobacteria, think of how bad things could be? The first time, they gave me my life back! That was 17 years ago. Talk to your doctor please.
Hi Cath,
Thank you so much for sharing your history with me. I know you’ve been through a lot… I really feel for you. It sounds like you were very strong person and I admire that. I totally agree that sometimes you have to take something when you’re nervous wreck and that’s why I’m taking Xanax and Lexapro right now. I need it plain and simple. I think this disease can cause a lot of anxiety and In my case I have yet to talk to anyone in the medical field about my exact situation, which hopefully will come when I get my appointment with Anne NJH. I have sent them my records, so I’m waiting for the next step, and hope they see me sooner than later. I wish you the best of luck and I’m always here if you wanna text me I will always answer you and support you. I wish I could make it all better for you and for all of us. love Bon