← Return to Dose anyone else feel like neuropathy is taking over their life?

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@nanuk2386

How can you stand this pain? I was absolutely going insane from suffering before all the drugs. They don't help fully, but man. Yeah I knew that these would be rough. Just having to increase my Gabapentin was really rough so I know what you mean but... Trying to work, even though I work from home, in IT. I cannot think anymore but I also couldn't in pain. I have two bad hips, two bad shoulders, two bad elbows, and my hands and feet... I also have bad enough arthritis everywhere, including my neck and lower back, that I think this pain elevates that pain to a level I just... I cannot sit at my computer worth a damn.
I also have tried ignoring it and trying to continue to do things. MAN!!! I cannot even describe what I feel like after doing 2 or 3 hours of yard work. I have also been laid off as of Sept. 1st. If I don't or cannot continue I lose out on this bonus I was promised. I have to struggle through but there is NO WAY I can sit in job interviews and actually tell people I am ready to work for them. Yeah it's getting worse faster it seems nowadays. Maybe it's been doing this for a while, but now it's more permanant where my thighs feel week and I wake up in a painful or uncomfortable "tingle". Thankfully I sleep pretty well I guess. As soon as I wake up, my feet start to get damp and cold and this "tingle" becomes intolerable. The only way I can explain it to people is having your older brother sit on your chest holding your arms down and hitting your sternum over and over. It starts to really hurt. I know I am awake then. 🙁 I have to get up. Then the pain gets worse over the course of the day. My anxiety is now helping to cause pain I'm sure. I have applied for an appointment to Mayo. Yeah my doctor seems to be of the mind there is nothing more I can do. Other than go to one of those chiropractors that unfortunately are on the other side of the city and pay out of my pocket. I have not done that and don't expect a lot of help but... I have not wanted to admit it, but I am thinking I might have to apply for disability but my doctor said SFN doesn't qualify well. ????
I'm sorry to just talk about my pain again. Nobody understands. I will and have started trying to find something else, but I have to work and that is not leaving much energy for anything at this point.
Thank you.
T

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Replies to "How can you stand this pain? I was absolutely going insane from suffering before all the..."

I am 76 years old now, but if I was young, I’m thinking I wouldn’t be able to escape the world of pain and who knows what I might do

As it is , I am trying medical Marijauna. I suggest you might try it, and see a counselor who supports it.

There is a chronic pain forum on Facebook that I belong to. There are not a lot of severe pain forum options, and mostly support forums, but they can be depressing. Some people do find help, but it’s not easy. You might try hanging out on Facebook and check out chronic pain forums.

I wouldn’t be afraid of the disability application process. If you have ALL your medical records, just be prepared to spend a long time in front of the computer working on the government application. There are areas to describe your physical changes. You’ve done a great job describing them on this forum. If they need more information, they will contact you. You will also get periodic updates. Be prepared to input exact dates! The more info you give up front, the better your responses.
I applied BY ACCIDENT. I was applying to get my SS benefits at age 62. The line of questioning led me to the disability application. I was approved on the first try. In addition to the disability payments, I also was able to get Medicare early, which is a blessing.
Have a friend help you with it if needed. But you won’t know until you try.
The disability money is yours. You have been paying into it, and it sounds like your illness would certainly affect your ability to keep working.