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Cisplatin: What was your experience on this drug?

Gynecologic Cancers | Last Active: Dec 22, 2023 | Replies (25)
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@bunyipbaba

Thank you, naturegirl15. I have scoured the websites of MD Anderson, Mayo Clinic, Johns Hopkins, Dana Farber, Memorial Sloan Kettering, etc. and all say the same thing about treatment for vaginal cancer. I tend to cope by researching. It gives me a fleeting illusion of control. This has all happened so fast, and I am being treated at a National Cancer Institute Center in CT. I have reached out to my pulmonologist and hope to hear from her today. I greatly appreciate your support and suggestions. Like tjperry, I wonder what others have experienced with chemoradiation involving cisplatin. Or if anyone has opted to forego the chemo and gone with radiation alone. I will update once my oncologist and I reach a treatment decision. Thank you for your compassionate, informative reply. I read you earlier posts and hope you continue to heal and find joy in your life.

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Replies to "Thank you, naturegirl15. I have scoured the websites of MD Anderson, Mayo Clinic, Johns Hopkins, Dana..."
Helen, Volunteer Mentor | @naturegirl5 | Apr 19, 2023

@bunyipbaba. Thank you for your quick reply to my questions. I am like you when it comes to coping. I do lots of research and read from valid and reliable sources as you have been doing. I also cope emotionally by reminding myself over what I have and do not have control. I remind myself to stay in the present too.

I'm sorry I don't have more information about Cisplatin for you. I'm going to tag @val64 who was treated for a different kind of gynecological cancer. She is very knowledgeable and provides well written advice on these types of topics. I will also search our membership in this Support Group and see if I can come up with a few more members I can tag.

I know what you mean about everything happening so quickly. That was the case for me too. It's difficult to make such rapid decisions and it's good that you are getting your care at an NCI.

I am at Mayo Clinic as I write this. I'm here for my cancer surveillance (every 4 months) appointments. I'm pleased to share that the CT showed no evidence of disease. I'll see my provider tomorrow morning but I don't expect the physical exam will change these results.

Will you let me know what you find out from your pulmonologist?

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Helen, Volunteer Mentor | @naturegirl5 | Apr 19, 2023

Hello again, @bunyipbaba

I did find one of our members in our Support Group, @miriam57 who has had Cisplatin as part of her treatment for endometrial cancer. I've tagged her here so I'm hoping she will reply to you and tell you of her experience with this chemotherapy agent.

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