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@aminaahmoody1

@frances007 Thank you for telling me your story, and I commend you for having so much patience but it is a doctors responsibly to inform and also investigate any and all abnormal result and sometimes waiting can be more harmful than good. We have to be our own advocate because if we don't our life is at risk. I have made it my mission to alway research my abnormal test results, I just wish I had done so in 2021. I have a doctors appointment today with my oncologist I guess to come up with a treatment plan, sadly since I have gotten my results back from my biopsy I'm more confused now then I was before. The oncologist surgeon want me to get a biopsy done on my liver now and he wants to do a genetic testing because he's saying that I am to young to have pancreatic cancer. Also he wants me to be apart of a clinical trial, this is so overwhelming. I just want them to treat me so the pain can stop but I feel like a lab rat. I am a person, a mother and a wife and I want is to be able to see my youngest daughter graduate from high school at least one of my children to get married (smiling) but I fear that will not happen because their taking they time to fix it. My apologies for going off course I'm just venting. The summer is not that far off but I would try to get an earlier appointment, time is a virtue but its also precious so we have no time to waste it. I pray that whatever it is that your are facing its easy and able to be cured. I wish you all the luck!

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Replies to "@frances007 Thank you for telling me your story, and I commend you for having so much..."

@aminaahmoody1 thank you for your encouragement, and no need to apologize for "venting." In all honesty it feels much more difficult these days to be a well informed patient than it used to be. I am unable to secure and earlier appointment, and because of this I have decided to more or less try not to "overthink" what might be going on with my liver/pancreas. I saw my doctor yesterday and was dismayed that he could not explain to me the results of many of my recent lab tests, instead telling me that he had made a referral to a hematologist, and an appointment with that specialist could take "awhile." I understand your feeling like a "lab rat" and I would think twice about becoming part of a clinical trial. You have enough to deal with already, especially since you have a family, including children.
I hope your appointment today goes well. I will be thinking of you.
With respect to my patience, admittedly it is running out. Best of luck to you and thank you again for the post