New to this group. I'm 74 and recently diagnosed with primary vaginal cancer thought to be the result of HPV 16 and many years on prednisone to treat fibrotic pulmonary sarcoidosis. I am scheduled to start treatment next week, and I am struggling to make a final decision about what treatment method to embark choose. I am scheduled for 35 IMRT treatments 5 days a week for 7 weeks. The overwhelming issue for me is whether to have weekly low dose cisplatin concurrently. The side effects terrify me. My quality of life is already seriously compromised because of O2 dependence and 27 years living with the slowly increasing limits the pulmonary sarcoidosis imposes. I absolutely do not want to come out of treatment far more compromised (neuropathy, additional hearing loss, etc.) then I am now. I would appreciate any input since this is such a rare cancer (NOT the lottery I hoped to win) that all treatments must be extrapolated from cervical cancer treatments. There are never enough patients to conduct any randomized treatment trials on vaginal cancer. Thank you for your patience.

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