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@martyk

Sorry to hear that. I had a SCS Boston Scientific implanted in the area 2 1/2 years ago. I had it removed 2 months later because I was getting a lot of parathesia in the toes of my right foot. It did help reduce he pain in the toes but I couldn't take the parathesia. Perhaps I should have given it more time. The battery/generator did not cause any pain where it was implanted. Maybe at first it did but not for long. I guess I have a little bit more of a cushion there. The Boston Scientific representative told me recently that the devices they use now do not cause any parathesia. Have you talked to your doctor about a pain pump?

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Replies to "Sorry to hear that. I had a SCS Boston Scientific implanted in the area 2 1/2..."

Thank you @martky. I have discussed a pain pump as well as pain patches with my doctor, but he is reluctant to prescribe either. I have been on a pain patch in the past, and that was very helpful. I went off the pain patch and switched to methadone because of the Medicare Donut Hole. I am no longer taking methadone, and now just using the Norco. While I have been encouraged to wean myself off of this medication, it is difficult because of the pain associated with the interstim device. Sometimes I do use Advil even though I have been told not to, because ibuprofen does help. However, I also know that the ibuprofen is bad for my stomach as I have had bleeding in my stomach in the past as a result of using too much ibuprofen. Ice has become my best friend these days.
I too have a lot of numbness and tingling in both legs and feet if I sit too long, but have been told that this is a result of all of the weight I have lost as a result of my liver problem. My neurologist has ordered me a donut pillow, which I need to follow up on. As a result of the numbness/tingling I probably spend more time standing than I want to. I am an artist and while I used to sit and do my work, I notice now I am standing more than 80 percent of the time, and this has created a host of other issues.