Hi Susan,
Sincere thank you for the information on immune boosters. I have started taking a Vitamin C/Quercetin supplement. Both are very good immune system supports. Also Cranberry Extract to ward off UTI since my urethra and bladder are going to be subjected to catheters for the next 6 weeks with BCG instillations.

The hardest part of a diet change is weaning off chocolate bars. I am a chocoholic and want something sweet to eat. Since sugar feeds the cancer, I am trying my best to reduce. It is disconcerting to reduce sugar and bread and potato consumption only to find the scale going higher. I lost my right adrenal gland when they took out the kidney (they were "stuck" together) and my Thyroid Stimulating Hormone level is higher. I lost 30 pounds from the on-set of UTUC and the start of Immunotherapy. I've gained back 20 pounds (that I don't need). Is my metabolism slower because of the immunotherapy?

My Oncologist, urologist and the onco-urologist surgeon who did the RNU are all confident that the BCG will work in combination with the Nivolumab therapy and that I not loose my bladder anytime soon. I know they are putting a bright spin on it. All of the journal articles on Bladder cancer after RNU surgery for Upper Tract Urothelial Carcinoma note that BCG is not a guarantee, as your husband found out. They say "everyone responds differently", but statistics are supposed to provide a mid-ground of the responses, and Bladder Cancer after UTUC has the mid-ground at the low end of the "progression-free", "overall survival" spectrum.

I hope the doctors are right, but am prepared to say "I told you so". Time will tell.

Give your husband a hug for me.
Linda