← Return to Dose anyone else feel like neuropathy is taking over their life?

Discussion
Comment receiving replies
@nanuk2386

I am at my wits end too!! I think this has been going for a long time. It's now feeling like it's coming to an end. I cannot fathom how I can live much longer. I feel so badly all of the time. I cannot walk or stand or much of anything without so much pain. I used to walk 5 miles a day, ski, hike. I am wondering if I will be able to do my yard work anymore. That is my only exercise. I have had 11 surgeries in the past removing torn cartilage or as with my hips, I had my labrums almost completely torn away. I have had a few motorcycle wrecks that did a lot more damage than I could feel at the time. I have gone downhill really badly this past year. I feel like I have mono without fever all of the time. I wake up with my entire body numb, but I can feel it. It's like when your foot went to sleep and it's waking up. I seem to be stuck there most of the time. My neck and lower back both have arthritis as does most of my body. I am pretty sure I will not be able to fake my way through job interviews when we get laid off Sept. 1st. I take 2700 mg of Gabepentin daily. I take OxCarbazepene daily. I tried to quit taking the HUGE amounts of Ibuprophen, but I have had to go back to a muscle relaxer and Ibuprophen so I can sit at my computer and type. I have no brain left. It's not helped by self medicating, but my feet spend the entire day burning and soaking wet. That makes them get colder and colder and the pain level goes up. If I smoke, I have found my joints hurt worse for a while but my feet go from cold and wet, to hot and burning, but I can usually deal with that better. That is making my brain even more mush. I have a difficult time remembering words and I have undiagnosed OCD I believe and that is making my anxiety level up so that my heart will race at 168 bpm at times and now that I have this watch, it will also warn me that my heart rate is below 40 bpm on occasion. Just sitting watching TV most of the time. I also have to hold on to something when I stand since I can get really dizzy and then the whole right side of my face feels numb and warm. The one thing I have, I seem to have less pain at night most of the time. Except for my neck nowadays, I sleep or pass out well. I MUST sleep 8 hours or I can barely function. I am at a loss.

Jump to this post


Replies to "I am at my wits end too!! I think this has been going for a long..."

Gabapentin does weird things to the body. I had terrible dizzy spells and loss of balance when I took it, and I was taking only up to 300 mg/daily. Then the oxcarbazeprene has serious side effects too. I think you need to find a different doctor. I also think you need to apply for disability. See a counselor to help you through this mess too. You can’t do this alone. A counselor will help you to think clearly. I know how hard it is to sort out this —(not printable words) because I suffer from intense pains. The neuropathy is not something to play with, it gets worse, but you already know that. If you talk to social services about disability ask them about good counselors who may be able to help you sort this mess out and find help. I can’t sleep because of pain. What I suggested to you is what I’m doing myself . Except, I am retired, and good thing because I couldn’t work, I can hardly get across the room.