My initial neuropathy started in 2012 after knee replacement. Mild symptoms numbness in fingertips and arm weakness. Progressively got worse over period of years and after going to several doctors and many tests finally got diagnosed with CIDP around 2020 and put on monthly treatment of IVIG in May of 2020. Initial treatment brought about the most improvement. After initial treament I didn't feel I got much better, but my follow up visits showed and battery of neurological tests showed I wasn't getting worse. I was able to get disability benefits, do some part time work, and take on a pretty vigorous exercise regimen. Life was good! Last week 4/11/23 had emergency surgery for ruptured blood vessel in abdominal area and that surgery went well, however my neuropathy symptoms went to another level. Currently need my wife to do so much for me and have limited function in my hands and feet & legs. For first time since this process I'm really scared for the impact this may have on my life. I'm 63 year old male and see a neurologist at John Hopkins. Thursday I have IVIG treatment and hopefully that can have an effect on my current condition. Anyway wanted to join the group so we can support one another and our experiences can give one another hope
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