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DiscussionAnyone else diagnosed with acoustic neuroma, a benign brain tumor?
Brain Tumor | Last Active: 6 days ago | Replies (510)Comment receiving replies
Replies to "Hello @vickid117 and welcome to Mayo Connect! First, let me express my sympathies to you on..."
I will be having surgery for acoustic neuroma next month. I am terrified.I already have hearing aids because I went deaf in my right ear 2 years ago. I had no idea that a tumor was the cause. I thought it was my age. I was 66 when I lost it.that was around the age my dad lost his.my tumor is large and is pressing on the brain stem. That pressure is causing pain and balance issues. I have no other options but surgery. I am hoping it goes well and I can drive again. I feel so isolated. My hubby is so good to me but I know it is hard for him too. Please share more about your surgery and recovery. It would help a lot.
I can tell you, do whatever the doctors tell you. I had my surgery at John Hopkins downtown Baltimore. My surgeon was excellent. The first 2 days I have no memory of much. I was sedated and didn't feel or remember anything. I can honestly say each day wasn't great, but I kept this thought in the back of my mind.My tumor wasn't cancerous, there is someone worse off than me, and this won't last forever.Having a good support system at home, helps a great deal. Remember to rest as much as you can. The rest will help you heal and have a better outcome. I was in the hospital for 1 week. My surgery was over 71/2 hours long. I had to be the one with an unusual situation. Tumor wrapped around something. While in hospital I had physical therapy. My son would walk the hallways with me. They told me the dizzier I made myself, I would get better faster.I had difficulties swallowing after surgery. Another symptom I never had before surgery. No two bodies are the same. Believe me I googled everything about acoustic neuroma I could find. It will be 3 months on Sept 8th since my surgery. I am currently dealing with the dizzy feelings and swallowing, not to mention total hearing loss in my right ear since surgery. Getting hearing aides in about a week.All in all I am thankful to be tumor free. I didn't mention I've been out of work for almost 3 months. Getting ready to go back in 2 weeks. Just started driving small distances. Remember every situation is different. You may not experience any issues. I just like to know what could happen. Prayers certainly helped. Wishing you success. I will keep you in my prayers.
I had a Crainiotomy for tumor. My Vestibular nerve was cut. The acoustic neuroma was near my ear canal. The cranial nerve around brain was cut. This nerve affects hearing and balance.I was told I would more than likely lose my hearing in that ear. I did lose it. Just went yesterday to find out about hearing aides. I hope I will meet someone who has had more recovery time than me.I've got almost 3 months down. Would love to hear that it really gets better, by an actual person who has experienced it. Thank you for your kind words. It has been a rough year both physically and emotionally.