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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)

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@hopeful33250

Hello @rose830 and welcome to Mayo Clinic Connect. As @californiazebra said, I also had to look up this type of cancer. On Mayo's website, I found this information:
--Merkel Cell Carcinoma
https://www.mayoclinic.org/diseases-conditions/merkel-cell-carcinoma/symptoms-causes/syc-20351030
I would encourage you to read the information (even if you don't understand it all) and at least become familiar with this diagnosis. That way you can ask good questions as you meet with doctors about treatment.

In the first paragraph of the article it says, 'Merkel cell carcinoma is also called neuroendocrine carcinoma of the skin." A couple of paragraphs later it says,

"Merkel cell carcinoma tends to grow fast and to spread quickly to other parts of your body. Treatment options for Merkel cell carcinoma often depend on whether the cancer has spread beyond the skin."

Has a biopsy been done yet?

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Replies to "Hello @rose830 and welcome to Mayo Clinic Connect. As @californiazebra said, I also had to look..."

Yes, I have had a biopsy and it was malignant. Tuesday I have a PET scan and Wednesday I get the results. I’ll know then if it has spread. I think waiting is the hardest part. Thanks to all who read my post and responded.