← Return to Managing Post-Exertional Malaise (PEM): What can help?
DiscussionManaging Post-Exertional Malaise (PEM): What can help?
Post-COVID Recovery & COVID-19 | Last Active: May 12 11:33am | Replies (74)Comment receiving replies
Replies to "I have been experiencing this for >2 years and have found that pacing myself is the..."
Thank you for writing this! I had a concussion in a car crash and then got Covid in the same week, in the first days of February. I'm feeling a tiny bit better but still pretty much like I did when I came home from the hospital. I'm working now on coming to terms with the ongoing effect on my life, friendships, finances, independence, etc.
I don't need PT but do have about 12 other symptoms, and brain fog is the worst. But physical effort seems to affect cognitive function, and vice versa. I've been jotting down a sentence or two about my worst symptoms every day, and then using a number from 1-10 to indicate how my functioning that day compares to before it all happened. Your system of tracking symptoms is a much better organized way of grouping them and also identifying triggers and what does and doesn't help. I can see how it will be much more useful and effective. Thanks again!
I totally relate, almost exactly, since Oct 2021. It's so frustrating. Spring cleaning is in the air and I can only do about 15 minutes at a time, rest for 30-40, and resume again. Only about an hour of actual work takes like 3 hours otherwise down for the next day. I too am working on limiting and moderation, but it is difficult for me.
This is amazing. So organized. I've been trying to find my baseline. But keeping track of everything is exhausting! You have definitely inspired me to try again, this time I will do it your way. Thank you so much for sharing your experience and technique.
Thank you for this plan to track symptoms and actually get things done. I used to be go go go, but my fibromyalgia put a stop to that about 15 years ago. Once I removed the stress (now ex husband) I was able to function better, but I still had a very stressful job. In December '24 I had a bad fall at home and ended up in the hospital for 2 weeks. Halfway through, I got COVID for the first time. I got all the vaccines as soon as they were available, so I definitely tried to protect myself. I had a relatively mild case, high fever and a lot of pain for one day, but the recovery from the accident took a while and I attributed lack of stamina to that. I ended up retiring two months sooner than I had planned, and was looking forward to doing things. HA. Two days in a row I did gardening and have been wiped out ever since with gastrointestinal symptoms and body aches all over. I am grappling with the possibility that I may have to really limit myself and boy, do I hate that. Glad to join a community that understands the struggle.
Hi @rinadbq. Tx so much for taking time and energy to thoroughly explain what so many of us have experienced and hope this type of info can help others with long haul and enable empathy with understanding for those who do not.
Healing to everyone 🌈