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Can PN have multiple causes?

Neuropathy | Last Active: Jun 11, 2023 | Replies (20)

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@njed

@dbeshears1 -Boy you are right, talk about confusing!! If I'm right & you have axonal sensorimotor, I'm confused on why you take Gabapentin? When I went to Mayo in MN, they told me in no uncertain terms that with my PN.... NOT to take Gaba or Lyrica...it could possibly make my gait worse. I'm not sure it could get much worse than what it is. I guess your symptoms could differ from mine. Or perhaps the causes differ but the symptoms are the same except mine took decades to develop. This heading of possible multiple causes is something that should not be overlooked. The mystery continues....the best with your new doc.

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Replies to "@dbeshears1 -Boy you are right, talk about confusing!! If I'm right & you have axonal sensorimotor,..."

Yes, we have same diagnosis, but mine all started & crashed over 10 days, and I’ve picked myself out of my wheelchair since then, had to learn balance & walk again; my knees just buckled and that was the main handicap I had to overcome & rebuild, though my hands are affected too. The Gabapentin has helped tame the terrible cold/heat intolerance that I had at first, and it’s only a nuisance now. But the main thing Gabapentin does for me is to control the deep nerve (not muscle) pain I get in my legs and hands. I almost always know when it’s time for another dose, as the pain sets in. I love the rare occasion that I realized I missed a dose and didn’t hurt! I know some folks, especially with SFN diagnosis have the heat/cold, but no pain with their tingling and numbness. I think that’s why I like to dig for all diagnostics they’ll allow, so help steer me toward the mist tried and true remedies for a given symptom. I think the one universal remedy, as you know, is activity!!