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Neuropathy | Last Active: Jun 11, 2023 | Replies (20)
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Replies to "@dbeshears1 -Boy you are right, talk about confusing!! If I'm right & you have axonal sensorimotor,..."
Yes, we have same diagnosis, but mine all started & crashed over 10 days, and I’ve picked myself out of my wheelchair since then, had to learn balance & walk again; my knees just buckled and that was the main handicap I had to overcome & rebuild, though my hands are affected too. The Gabapentin has helped tame the terrible cold/heat intolerance that I had at first, and it’s only a nuisance now. But the main thing Gabapentin does for me is to control the deep nerve (not muscle) pain I get in my legs and hands. I almost always know when it’s time for another dose, as the pain sets in. I love the rare occasion that I realized I missed a dose and didn’t hurt! I know some folks, especially with SFN diagnosis have the heat/cold, but no pain with their tingling and numbness. I think that’s why I like to dig for all diagnostics they’ll allow, so help steer me toward the mist tried and true remedies for a given symptom. I think the one universal remedy, as you know, is activity!!