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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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Dr. Antonelli at Shand's in Gainsville Fl.
Shand's in Gainsville Fl.
I have after procedure it's all good called Drs .I was at low moment I'm good now still hurt but I think I'm gonna be in pain for awhile I think
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1 ReactionHello @dgosney23
I would like to add my welcome to you as well!
You mention having had a procedure. If you are comfortable sharing more about this, please let us know: What type of procedure did you have and how long ago was it? Did your doctors give you any timeline when they expect you to experience relief from the pain?
I hope that you begin to feel better. I look forward to hearing from you again and hear how you are doing.
Teresa
About 5 years ago, realized that hearing on right ear was diminished. Team of doctors; neurosiurgeon, radiation Doctor and one more. I had Gamma Knife radiation. Had no pain, only hearing loss. Tumor has been shrinking.
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1 ReactionHello all I think I'm ready to tell my story as well as share my pain a lil.I was diagnosed may 2018 with a very large vestibular schwana (4cm)and July 2nd I had it removed (they got all but 2percent).It is a long process I was on the table more than 12 HR. I tell you I didn't go in scared ,or worried about anything that's the kind of person who I am.. The after affects well that different for every person for me it's bad as I had balance hearing...I think the most annoying Is the fevers , headaches and facial paralysis and ringing in my ears but I'm dealing.My stitches come out Friday.That is how new this is for me. The surgery ultimately saved my Life..It's an up and down process and everything is not roses but it is doable
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2 ReactionsThanks for the information update. I was also diagnosed in May but I can't get an appointment till September. I appreciate all of your honest details. I'm eagerly awaiting the time when I can post updates. God bless you as you live with your"new norm".
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2 Reactions@dgosney23
Congratulations on getting up the courage to share your story! As you can see from @angelmema post it has helped her!
I hope you continue to feel better and keep up that great attitude of yours. I find encouragement from reading your posts!
Please keep in touch, I look forward to hearing from you again,
Teresa
Hi my name is Rocky I have two brain tumors now and I had one taken out in 2010 I have been feeling the urge to give up and let the tumors take me cause it feels like know one cares anymore it's very hard for my family to see me this way and I feel that I'm just a nusense to everyone I feel alone In this battle my wife is a trooper but I don't want to burden her any longer
If I may make a suggestion I think will help .It I think helped me if you have time before surgery get into shape .I'm 46 I think it might have helped me some.I m not perfect But I think losing some of my weight and being active before surgery helped.I wish you good luck as it's not an easy task but you got this...
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