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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@dlynn1210

Thank you for your kind reply. I’m at a point of losing hope three years later after the latest CT results show the bacteria in my lungs is twice as bad as one year ago. Then the Guru for MAC got angry with me because I lost another 1 1/2 lb telling me YOU ARE GOING TO DIE if you continue to lose weight. That gives me something to look forward to. I am trying to gain. At least I haven’t lost any more weight - holding at 94.6 lb down from 125 last Fall. I stayed right at 125 lbs which I have pretty much weighed my entire life until two years after being diagnosed with MAC. Even my diagnosis was slow coming as I have only been experiencing severe fatigue. My primary care doctor ordered the sputum test which is actually what provided my diagnosis.

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Replies to "Thank you for your kind reply. I’m at a point of losing hope three years later..."

Hmm, it might be time for a new doc, maybe at Mayo, NJH or another NTM and MAC center of excellence?
It's awful when a doctor speaks to a patient like that, and certainly doesn't contribute to healing.
Sue