Replies to Hi Lisa, thanks for your reply. Yes, we shall miss Merry and her expertise. Her experience…

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Lung Cancer | Last Active: Sep 10, 2023 | Replies (125)

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@vic83

Hi Lisa, thanks for your reply. Yes, we shall miss Merry and her expertise. Her experience was very helpful for me to understand the animal I was dealing with.
My PET scan is in 9 days followed by Radiation Oncology consult two days later. I have not had radiation before and am wondering about how many/how often the sittings will be.
Having Multifocal means having multiple nodules at different levels of development. To follow, I track all my nodules reported in my CT scans in a spreadsheet. It is a challenge because each Radiologist has his/her own style of summarizing.
What are you stage IV with?

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Replies to "Hi Lisa, thanks for your reply. Yes, we shall miss Merry and her expertise. Her experience..."

Lisa, Volunteer Mentor | @lls8000 | Apr 17, 2023

Hi @vic83, It can’t be easy to keep track of the nodules when there are so many. A spreadsheet is a great idea! The radiologists do all have their own style of reporting. I’ve noticed that some radiologists will mention conditions completely unrelated to the cancer and then no one will ever mention it again. Funny. I have a spreadsheet to track my timeline. I’ve heard that can be helpful if/when I may need a second opinion. I have ALK positive lung cancer, treated with a targeted therapy (high tech pills). They are doing their job for now, eventually the cancer mutates around the meds, and it will come back. So I have scans every 3-4 months.
Hoping that the radiation oncologist answers your questions, everyones treatment plan is different.

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