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Neuropathy | Last Active: Jun 11, 2023 | Replies (20)
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Replies to "Deb, my report from Mayo in MN says my axonal sensorimotor PN is connected to both..."
Ed - It sure is confusing. New appointment in new state last week to get established (or re-established after 6 years), and the Neurologist asked for my current symptoms... I mentioned cold (and sometimes heat) intolerance in hands/feet, finger/toes, and she abruptly stopped me & said they weren't symptoms of neuropathy, and that she would just read off a list of symptoms and I can answer yes or no if I have them. I was absolutely befuddled, but at the end of her checklist, I told her "Look, I am very sorry, but at the very start of this PN in 2016, I wore gloves & socks to bed every night, and usually during the day for 4 months (unless a hot flash extreme came on), as it took that long for the Gabapentin to help make the cold/heat intolerance bearable. I politely told her I had a hard time believing that wasn't on the list! She acquiesced and said OK, and her visit notes listed it. But what I was really wondering afterward was if this heat/cold extremity intolerance was a symptom of SFN not "Axonal" (or vice versa), and maybe a reason why she wasn't expecting me to list it. Maybe just an irrelevant moment, but as you now, we're all trying to figure it out.