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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 2 days ago | Replies (1298)Comment receiving replies
Yes, I need to have someone tell me why I am not being monitored and possibly getting chemo during this period between my release from the hospital and my date for whipple surgery. This is my local hospital and I was told that my whipple would be open with a 5” incision. Was told that they would know about the need for chemo after the surgery. 30% chance I would become a type 1 diabetic and 10% to 15% chances of bleeding, organ damage, or leaky connections after rerouting my insides. Six month recovery where I would lose 20 lbs. thanks for your initial reply.
Replies to "Yes, I need to have someone tell me why I am not being monitored and possibly..."
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Has your PC been staged?
Where is it specifically located? This is important ... it sounds as if, given the biliary stent, that it is pressing on the bile duct?
You should review this - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8469083/ - and as many more recent papers and analyses, as possible.
What are your CA 19-9 cancer marker numbers?
My sense is that you may not have read enough to ask the questions - and, demand answers. And, since you are at a local hospital, you may be getting a standards of care approach. This is, in my mind, NOT sufficient for pancreatic cancer.
I can only say - if it were me, I would be on the phone with Anderson, Mayo, Kettering, etc - TOMORROW - and immediately travel to your choice - frankly, whoever can see you IMMEDIATELY. Please don't wait!