← Return to PMR - How will I know I am in remission?

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@dadcue

Are you currently taking both Actemra and prednisone?

I took prednisone daily for 12 years for PMR. After Actemra was started, it took me about a year before I was able to get completely off prednisone the first time. It was probably more of an adrenal issue rather than a PMR issue because pain wasn't too much of a problem after Actemra was tried.

When Actemra was being used for Covid patients, I was unable to get any Actemra injections for a period of about six months. I needed to take 10 mg of prednisone and Humira but the pain still wasn't well controlled. When Actemra was restarted, I was able to taper off prednisone again in a couple of months the second time.

My rheumatologist doesn't want me off Actemra if I that will mean that I would need to take prednisone again. I have now taken Actemra for about 4 years except for a couple of interruptions.

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Replies to "Are you currently taking both Actemra and prednisone? I took prednisone daily for 12 years for..."

I’m interested to know if you have experienced any serious side effect from Actemra. Our Rheumatologist wants my husband to start monthly infusions. He has PMR & rheumatoid factor. He has been on Prednisone for 4 years.