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Replies to "My PN has been determined to be genetic. My father had it and so does my..."
In February I was tested and confirmed to have CMT. Since, I have notified cousins to find I inherited the disease from my Grandmother’s side of my family. All CTM cases in my family had been undiagnosed however they have same symptoms. High foot arch, toes have knuckles, hot, itchy feet and hands and eventually it moved to arms and lower legs. My legs now give up after being on them for about 20 min. Where I was a very active 70 year old to needing 12 hrs of sleep a day. Balance is poor and am now looking for an Occupational Therapist to work on balance and walking. My eye sight is changing and I have an appointment with a surgeon to check the optic nerve. Randi from BC Canada
No - What is it? Is it an auto-immune disease?