Since this is so long after your post, have you found a solution to your problem. After a year of my reversal, I pretty mush I can control the problem.
Peggy
Since this is so long after your post, have you found a solution to your problem. After a year of my reversal, I pretty mush I can control the problem.
Peggy
Welcome to Connect. Would you be able to share a few more details about yourself? Were you diagnosed with colon cancer or colorectal cancer? When were you diagnosed?
Hello,
I just joined Mayo Connect and searched my previous cancer: Anal Cancer (and also Vaginal Cancer that stemmed from the former). I'm not seeing much here. I didn't realize it was this rare..
It's not one I'd wish on my worst enemy, for sure.
I was diagnosed in 2018, chemo and radiation, then surgery in 2019 when another tumor formed in my vagina. The specific cancer is Squamous Cell Carcinoma of the Anus. It's caused by HPV that my body could not clear, as it does in most other people.
Anyone in the group that has had this?
Hello,
I just joined Mayo Connect and searched my previous cancer: Anal Cancer (and also Vaginal Cancer that stemmed from the former). I'm not seeing much here. I didn't realize it was this rare..
It's not one I'd wish on my worst enemy, for sure.
I was diagnosed in 2018, chemo and radiation, then surgery in 2019 when another tumor formed in my vagina. The specific cancer is Squamous Cell Carcinoma of the Anus. It's caused by HPV that my body could not clear, as it does in most other people.
Anyone in the group that has had this?
I have just been diagnosed with this cancer. I had ureter cancer in 2021, on the PET scan in February an anorectal cancer showed up. It is through the muscles, with lymph node involvement. I start chemo radiotherapy tomorrow. I’m sorry you are dealing with this too. It is a very challenging road to be on.
I have just been diagnosed with this cancer. I had ureter cancer in 2021, on the PET scan in February an anorectal cancer showed up. It is through the muscles, with lymph node involvement. I start chemo radiotherapy tomorrow. I’m sorry you are dealing with this too. It is a very challenging road to be on.
I am very lucky to have had some of the best doctors to take control of my situation and make an aggressive plan right from the start. I started at Stage 2A (not sure what that exactly meant) and it was time to move quickly with chemo 5 days a week and radiation the same for 6 weeks, to start. When the vaginal cancer occurred, they had only one option for me - surgery.
Did they catch your first cancer in the beginning stage? Then, you had a break between cancers? Were you able to get relatively well between them?
I am very lucky to have had some of the best doctors to take control of my situation and make an aggressive plan right from the start. I started at Stage 2A (not sure what that exactly meant) and it was time to move quickly with chemo 5 days a week and radiation the same for 6 weeks, to start. When the vaginal cancer occurred, they had only one option for me - surgery.
Did they catch your first cancer in the beginning stage? Then, you had a break between cancers? Were you able to get relatively well between them?
When the first cancer was diagnosed I was stage IV. The only symptoms I had were malignant hypertension (very high blood pressure, it had always been low), & in hind sight fatigue. I was diagnosed in February of 2021, at a physical. My physical had been cancelled twice in the prior year, due to COVID. The ureter was blocked by the tumor, which killed my kidney, causing the rise in my blood pressure. I am also blessed with good doctors. My tumor was “gooey” & fell apart when they attempted to remove it (non-resectable), so some remained, it had also grown into the adjacent muscles. The pathology came back unspecified with squamous characteristics, which is rare for that area. The lymph node near that tumor was negative for cancer, but the peri-aortic, & para-iliac lymph nodes were positive. The treatment for that type of cancer (high grade UTUC) was surgery to remove the kidney, ureter, & bladder cuff, followed by 4-6 courses of chemotherapy (Cisplatin with Gemcitabine), followed by 28 radiation treatments to the area where the tumor was left, & lymph nodes. I got through 4 courses of chemo (about 4 months), but had a heart attack during the last infusion, so couldn’t have the last two courses.
My scans showed no evidence of disease for 18 months, then this anal cancer showed up. I have been struggling with energy, shortness of breath, & bowel problems since the first treatment, so I wouldn’t say that I had returned to healthy. Prior to all of this I worked out every day, water skied, hiked, led a very active life.
Hello,
I just joined Mayo Connect and searched my previous cancer: Anal Cancer (and also Vaginal Cancer that stemmed from the former). I'm not seeing much here. I didn't realize it was this rare..
It's not one I'd wish on my worst enemy, for sure.
I was diagnosed in 2018, chemo and radiation, then surgery in 2019 when another tumor formed in my vagina. The specific cancer is Squamous Cell Carcinoma of the Anus. It's caused by HPV that my body could not clear, as it does in most other people.
Anyone in the group that has had this?
I was diagnosed with anal cancer in September of 2022. It’s been a long road and I’m still not in the clear. I had 6 weeks of chemo (Xeloda) and radiation. I tolerated the chemo well, but the radiation was tough. The burns were so terribly painful. My tumor is all gone except for about an inch. I’m hoping in the next couple of months it will disappear completely. This squamous cell cancer in unrelenting. I keep reading stories about how it reappears. It’s difficult waiting for the other shoe to drop. I have been left to deal with fecal incontinence due to damage from the radiation. I can live with that as long as the cancer is gone.
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Since this is so long after your post, have you found a solution to your problem. After a year of my reversal, I pretty mush I can control the problem.
Peggy
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1 ReactionCan't hear, voice too low volume.
Hello @pegwright,
Welcome to Connect. Would you be able to share a few more details about yourself? Were you diagnosed with colon cancer or colorectal cancer? When were you diagnosed?
Anal cancer, 2014.
Hello,
I just joined Mayo Connect and searched my previous cancer: Anal Cancer (and also Vaginal Cancer that stemmed from the former). I'm not seeing much here. I didn't realize it was this rare..
It's not one I'd wish on my worst enemy, for sure.
I was diagnosed in 2018, chemo and radiation, then surgery in 2019 when another tumor formed in my vagina. The specific cancer is Squamous Cell Carcinoma of the Anus. It's caused by HPV that my body could not clear, as it does in most other people.
Anyone in the group that has had this?
-
Like -
Helpful -
Hug
1 ReactionI have just been diagnosed with this cancer. I had ureter cancer in 2021, on the PET scan in February an anorectal cancer showed up. It is through the muscles, with lymph node involvement. I start chemo radiotherapy tomorrow. I’m sorry you are dealing with this too. It is a very challenging road to be on.
I am very lucky to have had some of the best doctors to take control of my situation and make an aggressive plan right from the start. I started at Stage 2A (not sure what that exactly meant) and it was time to move quickly with chemo 5 days a week and radiation the same for 6 weeks, to start. When the vaginal cancer occurred, they had only one option for me - surgery.
Did they catch your first cancer in the beginning stage? Then, you had a break between cancers? Were you able to get relatively well between them?
When the first cancer was diagnosed I was stage IV. The only symptoms I had were malignant hypertension (very high blood pressure, it had always been low), & in hind sight fatigue. I was diagnosed in February of 2021, at a physical. My physical had been cancelled twice in the prior year, due to COVID. The ureter was blocked by the tumor, which killed my kidney, causing the rise in my blood pressure. I am also blessed with good doctors. My tumor was “gooey” & fell apart when they attempted to remove it (non-resectable), so some remained, it had also grown into the adjacent muscles. The pathology came back unspecified with squamous characteristics, which is rare for that area. The lymph node near that tumor was negative for cancer, but the peri-aortic, & para-iliac lymph nodes were positive. The treatment for that type of cancer (high grade UTUC) was surgery to remove the kidney, ureter, & bladder cuff, followed by 4-6 courses of chemotherapy (Cisplatin with Gemcitabine), followed by 28 radiation treatments to the area where the tumor was left, & lymph nodes. I got through 4 courses of chemo (about 4 months), but had a heart attack during the last infusion, so couldn’t have the last two courses.
My scans showed no evidence of disease for 18 months, then this anal cancer showed up. I have been struggling with energy, shortness of breath, & bowel problems since the first treatment, so I wouldn’t say that I had returned to healthy. Prior to all of this I worked out every day, water skied, hiked, led a very active life.
I was diagnosed with anal cancer in September of 2022. It’s been a long road and I’m still not in the clear. I had 6 weeks of chemo (Xeloda) and radiation. I tolerated the chemo well, but the radiation was tough. The burns were so terribly painful. My tumor is all gone except for about an inch. I’m hoping in the next couple of months it will disappear completely. This squamous cell cancer in unrelenting. I keep reading stories about how it reappears. It’s difficult waiting for the other shoe to drop. I have been left to deal with fecal incontinence due to damage from the radiation. I can live with that as long as the cancer is gone.
Volume too low on my computer also. Can anything be done so we can hear what the Dr. is saying?