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Initial consultation at a Mayo Clinic

Neuropathy | Last Active: Apr 20, 2023 | Replies (46)
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@davelobb12

Well said. I have been on Statins for 30 years and got this hideous disease about 4 years ago. Nobody has any answers and I mean nobody. Its extremely frustrating and I'm angry about it.
I have tried everything. I have a lot of pain in my feet and finally got medical Cannabis for sleeping and I use Tramadol for the pain during the day. Hard to even get Tramadol because doctors are afraid to prescribe it. No one seems to understand this or even seem to care. Shameful!

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Replies to "Well said. I have been on Statins for 30 years and got this hideous disease about..."
swanson2023 | @swanson2023 | Apr 15, 2023

Thank you again for sharing.
After starting Statins last fall, then getting PN, then researching (web-based) and discovering Statins cause PN, I encourage my doctor to pause the Statin. Did and now the Dr. Prescribed REPATHA.
Web show no indication it caused PN.
Hoping to stop Blood Pressure med - Lisinopril - manage BP with diet, exercise and taking BP regularly. We’ll see
Again- thank you

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lewin | @lewin | Apr 18, 2023

I agree. None of my doctors care and there is no place to go. Mine is getting worse. I sleep a lot due to fatigue and just not being able to cope any more. I have severe arthritis on top of it. I don't want sympathy. I want to know if anyone with small fiber neuropathy has been successful in being allowed to end their life.

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