Hi Ann - Yes, for sure - it is something I wouldn't have guessed in a thousand years could be so debilitating. Have you access to a physical therapist? Mine is a myokinesthetist who uses a number of machines (for want of a better word) to help with my P.N. I don't know the names of them, but anyone in that line of treatment work, would. One thing she does is apply deep tissue laser treatments to my feet and hands once every week. Medicare doesn't cover it ~ I have to pay for it but it works so well I am endeavoring to find a way to come up with the money (about $40. each session). Medicare covers laser therapy that is considerably weaker (and doesn't work for me) ~ in fact, the "machines" aren't even the same. It does not help with imbalance, but - wonder of wonders - my hands are actually usable again for small motor skills that do not require me to put pressure on them or handle heavy things.

A very unfortunate side effect of this disease we share is that one becomes less mobile for fear of falling, and therefore loses muscle strength in the legs. My P.T. recently acquired a platform with handbags that I simply stand on, with knees not locked, and it shakes at whatever intensity and length of time she sets it to. It also has program settings where the shaking is of random intensities. According to what she told me, 10 minutes (which is the maximum recommended) of using this device is the same as 20 - 30 minutes of treadmill workout. Presumably this is because your leg muscles work in response to the movement in order to maintain your balance. You don't walk anywhere - you just stand in place, and it does help with strength. Medicare covers it and I use it twice every week in her office (the second time in a week is not considered an appointment).

In addition to these things, I also use a device called a Scoop which helps with leg and core strength. You sit and pedal it but instead of up-down, it goes side-side. My P.T. loaned me one for several weeks to use at home --- a year ago I had to have a partial hip replacement and this was used in therapy for that. It helps with leg strength and flexibility, and is available for anyone to purchase. According to its website, it is about $250. I have not purchased one but if I had an exercise room or finished basement, I would.

P.N. has definitely changed my life forever from what I had envisioned, but I am grateful beyond measure for the options that are accessible, and for the blessing of the support groups that are available through Mayo. Keep searching for things you haven't yet tried - better yet, pray to God through Jesus Christ, that He would reveal what you need and show you how to get it.