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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)
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@hopeful33250

Hello @rmmartin and @marylou1944 and welcome to the NETs discussion group on Mayo Clinic Connect! It is good to have you join Mayo Connect.

I am glad that you found the video presentation helpful in understanding this rare form of cancer. Have either of you, or a family member, recently been diagnosed with NETs?

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Replies to "Hello @rmmartin and @marylou1944 and welcome to the NETs discussion group on Mayo Clinic Connect! It..."
marylou1944 | @marylou1944 | Apr 15, 2023

I was diagnosed with NETs in November 2015 following small intestine resection surgery. I have been on sandostatin injections every-28-days since April 2016. The injections seem to be controlling the growth of the tumors I have, primarily in the spine and bones. I am grateful.

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