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DiscussionPanic Attacks with new diagnosis and fear of the unknown: What helps?
MAC & Bronchiectasis | Last Active: May 1, 2023 | Replies (64)Comment receiving replies
Replies to "Hi Bon, Nice to meet you! I understand the anxiety that comes with this disease. Most..."
Hi Linda, I am interested in any help that you can give me. I am really frightened. I have been given no information by my Pulmonologist, I am trying to change doctors, and have an appointment with an infectious disease doctor at the end of this month. I would like to have information at hand that doesn’t necessarily include starting treatment with the 3 antibiotics , I did that 5 years ago and my hearing suffered. If I can live with this for as long as possible without treatment I’d like to do that. Help is needed and welcome. Thank you
Hi Linda, I watched the video you sent…….it was very good. I would love to hear about anything you do to make your thinking better and not be afraid. I know you have NOT taken the antibiotics……I know my body would not tolerate them…..I have not, to date, really been fully evaluated and spoken to….and that is why I am very happy that I will be going to NJH. Just waiting to hear about when the appointment will be.
Because of my lack of knowledge about my condition, my mind goes to the worst scenarios….I have literally learned all I know so far from the Mayo blog…..and the people are so kind and helpful….
I am riddled with fear….usually interpreting things in the worst light. I wake up in the morning with dread, knowing I have to nebulize, knowing all that fluid will come out and it scares me. I know it’s good it’s coming out, but why is it there to begin with?
I would love to speak with you if the offer still stands. I can use all the help I can get. The counselors I have been to have not been helpful…they don’t “get it”. …..thanks Bon