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@njed

@ray666 - Ray - your posting about the dizziness caught my attention. At times, I get this odd sensation (extremely hard to describe) almost as a circular motion. I guess dizziness is the only word. Meds? Low blood pres? I can't tie it to anything. Another thing that I mentioned to my primary doc...."really". Also, on your idiopathic dx, I was told that in 2018 confirmed by Mayo 2020 and hasn't changed. I too thought it was a temporary label but unless something comes up as a cause, I'm afraid the idiopathic dx will remain. One of the heartwarming neurologists I saw in perhaps 2019 said to me....you will die with this but not from it. Talk about a mixed bag of news!! That doc I scratched off the list which is what made me then turn to Mayo in MN.

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Replies to "@ray666 - Ray - your posting about the dizziness caught my attention. At times, I get..."

Hi, Ed (@njed) I like that abbreviation, "dx." That'll save me a lot of time LOL We continue to discover curious similarities between our two PNs. You mention an "at times" circular (dizziness?) sensation. Here I go again: Me, too! I'm familiar with the wobbliness that my PN gives; it's an old –– if unwelcome –– friend. But I would never say that dizziness is a symptom of my PN. What you've reminded me today are my very, very infrequent "spells" (every 2-3 months?) to which I could be persuaded to assign the word "dizziness." Since I don't connect them to my PN, I've bothered to mention them to any of my doctors. The last time I had one of those spells was maybe three months ago. My PN wobbliness, on the other hand, is with me every day, 24/7. ––Ray (@ray666)