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pete1962 (@pete1962)

Recurrence in Liver after Whipple

Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (48)

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@augustine777

Thank you so much for your reply. I had an appointment yesterday, and they are planning to do scans every 3 to 4 months for the next five years. That seems like a lot, but I’m also pretty worried about metastasis to my liver. My oncologist was trying to decide whether to do any adjuvant therapy to try to reduce the chance of reoccurrence. He decided against it. based on so many experiences on here, I kind of feel like we’re just watching and waiting for it to show up in my liver.

He reassured me that he has had many patients who never had reoccurrence after my surgery. He said I probably have about a 40% chance of more cancer in my future. That seems a bit high to not be doing anything about it.

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Replies to "Thank you so much for your reply. I had an appointment yesterday, and they are planning..."

Your plan for scans every 3-4 months sounds like they are trying to stay on top of it. I completely understand your concern about metastasis. My NET is slow growing so every 6 months has been sufficient. Every case is different but remember at anytime you can advocate for a change in plan if you don’t think what is being done is enough. Advocate for what you feel like you need and go from there. Best wishes!