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Recurrence in Liver after Whipple

Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (48)

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I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors. Ki-67 was 2.3 and 4.68.
Surgeries were in 2015 and 2017 and developed metastasis to liver in 2023. I would recommend being your own advocate and asking what they will do to monitor for metastasis going forward. I have been monitored, on average, every 6 months since 2017 @ Mayo and closely monitored for metastasis and I was always informed of the monitoring plan and findings. Please let me know if I can help further. Best wishes!

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Replies to "I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors...."

Thank you so much for your reply. I had an appointment yesterday, and they are planning to do scans every 3 to 4 months for the next five years. That seems like a lot, but I’m also pretty worried about metastasis to my liver. My oncologist was trying to decide whether to do any adjuvant therapy to try to reduce the chance of reoccurrence. He decided against it. based on so many experiences on here, I kind of feel like we’re just watching and waiting for it to show up in my liver.

He reassured me that he has had many patients who never had reoccurrence after my surgery. He said I probably have about a 40% chance of more cancer in my future. That seems a bit high to not be doing anything about it.