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Polycystic Liver Disease (PLD): Let's support each other
Just Want to Talk | Last Active: 3 hours ago | Replies (29)Comment receiving replies
Thank you @rosemarya a day or so, I posted an update about my condition and @pachab00 answered. From what I have read, and correct me please, PLD is only managed by getting rid of the cysts (draining or sclerosed) but is this day surgery or does it involve more? When it comes to a 'time' frame of reoccurrences of having this procedure done (1,2,5 or 10 years) looks like it depends on the person.
As this progresses will I need to be monitored by CT's and ultra sounds or more like annual MRI's.
In the older posts, I see genetic testing was an idea to have. Can someone tell me the reason why?
Replies to "Thank you @rosemarya a day or so, I posted an update about my condition and @pachab00..."
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I asked about genetic testing because I have 2 grown daughters. There is some research postukating that PLD might be modulated/affected by estrogens. Although neither daughter takes estrogen, they might consider it around menopause unless contraindicated. I haven't gotten an answer regarding genetic testing.
It is my understanding that sclerosing an over-large cyst is the only remedy. Other than that, monitoring is all that's done. If anyone finds out otherwise, please post, as will I.