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Who all has MAC and Alpha-1 Antitrypsin Deficiency?
MAC & Bronchiectasis | Last Active: Jun 16 7:32am | Replies (19)Comment receiving replies
I am considered a carrier also but from what I have read, you can still get sick. My lung doctor says something about missing a protein that protects your lungs. Either the liver does not make it or an abnormal shape that prevents it from getting to the lungs. There is a lot to alpha-1 it can get complicated. When I go back May 2nd. to see him, he is suppose to do a test that checks everything about my immune system. Over all I think my immune system works good because I typically never get sick and I don't take vaccines.
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Thank you for your response. My pulmonologist simply had his assistant call me with that information, then came the influenza and prescription. By the time I saw him the MAC culture had come back positive and the focus was all on whether or not to start the Big 3. I this in the Bronchiectasis & NTM360 newsletter— BLOG POST: Is Alpha-1 Related to Your Bronchiectasis? and started investigating from there, finding as you did that carriers can get sick. It gives a whole different perspective on my early childhood cough (diagnosed as asthma), possible effects of my dad's chain smoking, and where I am now. Except for this life-long cough/lung thing, I too, fortunately tend to not get sick.
Anna