They told me yesterday that it’s not unusual for a patient to have improvement after starting hospice care because they are mote concentrated on quality of life. Also they said if we want to temporarily end hospice care, we can do so and then start again later. But they don’t think this is a change in how the cancer is spreading. It’s now a moot point, because my husband decided yesterday he didn’t want scans or chemo again.
Hospice advised us to basically do whatever we want while he is feeling better and is still able to do so. So I am going to try to let go of the uncertainty.
The nurses have been a Godsend. The social worker has been my rock. I know she is there no matter what to help me think things through and talk me down from the ledge when I’m getting anxious.