Mine started right after my regular Moderna shot. I was fine until I got those, then it began. Mine is from my waist down. Been on prednisone for over a year, we (me and my rheumatologist) are now trying infusions to get me off Prednisone. I've only had 2 so nothing yet. They said it could take a few months for it to work. Crossing fingers. Without prednisone, I can't even hardly walk.