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DiscussionLiving with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Replies to "This is very frightening. I had a LUL lobectomy in November for NSCLC, Stage 1. Just..."
Good Morning! I am right there with you! I just had my segmentectomy LUL, for NSCLC (Adenocarcinoma)and a little wedge (Granuloma -benign), 3 weeks ago, today. I feel good, but this IS SCARY! Reading that after someone has gone through the same thing, they suddenly have stage IV somewhere else. I am only scheduled to have a CT every 6 months for the next 2 years. No chemo or radiation was “necessary” as my cancer was stage 1A. But I have read some of these other posts that say there cancer was stage 1 and it happened. Well, I know that God has me in HIS hands and whatever HIS will, will be done. I think the best things to do are remain Positive and treat myself a lot better and try to be healthier, by way of exercise (walking for now), food intake (Lots of fruit and veggies) and mindfulness/gratitude. If cancer does come back, hopefully this will all help me fight it again, like Mary- who has been living with cancer for 25 years! Everyone! KEEP UP THE GOOD FIGHT!
2yrs ago I had lobectomy for a stage 1 tiny spot that was biopsied. Dr said I didnt need oncologist because they got the cancer out clean. 9 months ago I was being treated for sciatica. After 6 months of orthopedist an mri showed cancer on my glute muscles. Stage 4. Pet showed some tiny spots on my lung and one lymph node involved. Radiation took the pain and swelling away. Now getting keytruda. I’ve had 3 infusions. My rump hurts now and I want a scan to see what’s happening. Dr says not to worry, that sometimes during immunotherapy the cancer can grow. How soon after starting keytruda should I expect a scan?
Hi @spikeb1, That’s great news that your first CT looked clear! I’m encouraged to hear that you and many others have found the cancer at an early stage. Yes, there are sometimes recurrences, but when that happens it is often many many years later. Also, don’t forget that those people without recurrences are often out living their best lives, and not hanging out on Mayo Connect.
It sounds like your surgery was successful, how are you feeling? How often will you have follow up scans?