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I read your post and I understand the consequences of suffering with pain on a daily basis.
While my doctor has suggested that I taper off of the opiates, I cannot because there is nothing else I can take due to stomach issues. Knowing well that my opiate use may be the root cause of my bile duct dilation, I have approached my doctor about a pain patch as I had in the past, but he always gives me the same response, "there is a black box warning."
I did not understand why you have had to taper off of the pain medication if it has provided you with relief. Perhaps medical marijuana would be of help, as it has for me on occasion. I am aware that our healthcare system is screwed up, and especially more difficult for those of us who are age 60 or older. A neighbor of mine recently told me that when she goes to pick up her Norco at the pharmacy, they hold back 5 tablets each time, and that she has now started hoarding the pills because she does not want to be without pain medication. There are also stories on the news about senior citizens who sell their pain medication on the streets to supplement their income. So, I guess the pain medication issue is a double edged sword.
I am fortunate that my doctor renews my pain medication each month, and that my insurance company sent me a letter advising I would be able to continue with the dose for the next year.
It sounds like you are doing a great job advocating for yourself despite the pain you live with on a daily basis. I commend you for the actions you are taking in an effort to get the attention of "the powers that be." Where I live they seem more concerned about the candy colored fentanyl being sold on the streets than they are about those who suffer. I am not saying that drug cartels are okay, but rather that the same amount of attention should be given to many of us who require certain kinds of medication in order to live a more fulfilling life.
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frances007
Love your title. We need 007 to find the missing link so we can replace it. I was removed twice because my pain manager didn’t agree with my Lyme treatment. (the first time- 30 years ago Lyme treatment was almost political) the second time because my pain manager sent me to his own infectious disease doc who wanted to repeat my Lyme test when I was in the middle of treatment and had a 2 inch chart 100 miles away at my LLMD. I didn’t refuse, just stated my insurance concern. These Lyme tests ae not always accurate, plus i’d rec’d treatment. I believe the DEA has come down on doctors so hard that they make up any reason. At the time and for several years I just could not wrap my head around it all. I had not done anything wrong. During the second hard withdrawal I saw an addictionologist because I figured he knew about that stuff. He put me on buprenorphine for a year and then back on my low dose F-patch because buprenorphine didn’t work. One day I called about my appointment and was told the office was closed. The DEA removed his privileges. No referral, no explanation, and no medicine. It was through the pharmacy that i discovered wht happened. Some tecnnical issue. This is medical abuse. But it’s inflicted by law enforcement. I use Rx cannabis, but like you have GI issues and very fragile weight, and Rx cannabis kept me out of pain management. Today I called back and another person says they may work with me, but not necessarily. Will look into this further into it. This is the first postive response I’ve gotten in two years.
Thank you for your support. I’m over 60 also. Life presents enough challenges as it is, but like a stream, we floated and now we are jammed in the rocks and it hurts. I’d like to float or better yet swim, again.
I’m surprised that a pharmacy hold back medicine. That seems a little fishy to me. Speaking of streams.
I wonder about that policy. I read that some chains have diverted medcine from patients, warranting DEA to put more restrictions on pharmacies. I have a friend on Li who is a pharmacists and up on current events, pertaining to medicines. I could refer you if you like, or send a link. or whatever is allowed here. : ) Would be wonderful i fpain patients everywhere could speak up, but honestly it’s not as easy as it sounds because of the pain! Some nights I get a bit of sleep, and I relish that. I think more clearly, able to organize better. Thank you.