← Return to Polycystic Liver Disease (PLD): Let's support each other

Discussion
Comment receiving replies
@iowachica

After several other tests which also included an MRI and CT. The diagnosis is officially PLD with a few small cysts on both kidney is what I was told. The doc who works with liver disease patients said aside from what the MIR and CT confirms... all of my labs (3) look great. I look like I'm 3-4 months prego and was told the only way to solve this is to go to a medical center in Omaha, Ne and work with the team of doctors to drain the larger of the cysts, which had not popped (over a span of 12 days the 2, I had popped).
The conversation from the doc is in my head but really...it's kind of muddled. Like my brain is still saying "it's not real". Please let me know what draining your cysts feel like and is there a pro or con to draining them or infection? How long is it between draining and or how fast would more come? So lost and just too much to process. Thank you in advance

Jump to this post


Replies to "After several other tests which also included an MRI and CT. The diagnosis is officially PLD..."

Hola, Chica. I don't know the answer to your question but send support. I had 1 drained an noted in my earlier entry. It came back. I had it sclerosed. I have a repeat CT in a couple of weeks to see if others have grown. Kaap us informed.
There's always a risk of infection with a skin puncture. Make sure they wash and wear gloves. One tech was going to remove my drain (which had been in for 2 hours as part of the sclerosing process. I had to insist he wear gloves and put antibiotic cream on before the bandaid.