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Undifferentiated Connective Tissue Disease

Autoimmune Diseases | Last Active: Jul 26 3:41pm | Replies (34)

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@marymaryoregon

@cherylmcg - what’s really wrong is that your immune system (this super complex and totally not fully understood thing) is dysregulated. And mine too!

It’s so much more complex than, say, hypothyroidism. Thyroid hormones low = add thyroid hormone = person usually feels much better.

If your immune system has developed antibodies that attack your body instead of not your own cells? There’s no straightforward treatment for that. Hydroxychloroquine is a good start as it has multiple actions that regulate immune function. You can’t just turn off the immune system - that could be way worse! Maybe my system actually is too slow clearing naturally dead cells and that’s what revs it up to attack mode? Maybe someone else’s system is revved too high to start with and starts increasing the rate of cell death? Those are both totally made up examples, but my point remains that: 1) you totally have a real thing 2) that real thing is super complex because it relates to the immune system and 3) it’s hard to know how to feel better while you are living it.

Major major kudos from me on exercising and eating well!! My puppy doggy is pretty successfully getting me moving most days, my diet of overly processed foods needs a ton of work though. Baby steps!

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Replies to "@cherylmcg - what’s really wrong is that your immune system (this super complex and totally not..."

@cherylmcg and @marymaryoregon. You are so right in thinking the immune system has somehow gotten off track. I provided the links to 2 articles that may help explain it better.
https://www.hopkinsmedicine.org/health/wellness-and-prevention/autoimmune-disease-why-is-my-immune-system-attacking-itself
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1299128/
Did you learn anything new? Or did the articles clarify your thinking?