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Has anyone chosen the Watch and Wait and regretted that choice?
Neuroendocrine Tumors (NETs) | Last Active: May 24, 2023 | Replies (42)Comment receiving replies
Many of us, myself included, had NETs that were found incidentally (during a test that was looking for something else). It sounds as if you have adjusted your eating habits so that you can be comfortable with a smaller pancreas.
You are fortunate that your glucose levels (blood sugar) have remained normal.
What type of follow up has been suggested to check on the status of the NETs?
Replies to "@augustine777 Many of us, myself included, had NETs that were found incidentally (during a test that..."
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I have my second appointment with my medical oncologist today. I am in Washington State, but my doctor is in Idaho. By a stroke of luck, my doctor is good friends with Dr. Halfdanarson and has spoken to him about my case (I guess they went to college together). My doctor also did genetic testing on the tumors. There is no current evidence of any other tumors in my body although I am technically stage 3 because of the lymph nodes. He is discussing with Dr. Halfdanarson whether we should do some adjuvant therapy to go after any cancer cells to lower the possibility of recurrence. Whether we do adjuvant therapy or not, I will be doing scans every 6 months to watch for any other metastasis. Because the tumors are grade 2 and slow growing, I will be doing scans for a longer period of time to make sure. At my appointment today I will find out if there is any plan for adjuvant therapy and what my schedule is for scans.