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@t26

personally i do not like the wait and see strategy. My thought… study and learn as much as you can and get second and third opinions… and if at all possible, get them surgically removed

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Replies to "personally i do not like the wait and see strategy. My thought… study and learn as..."

@t26

I appreciate your comment! Learning as much as possible about this rare cancer is important. Getting more than one opinion is also the best way to go about making decisions.

I would just add that getting these other opinions from a NET specialist is important. Mayo Clinic has NET specialists in all three of their locations. Information about appointments can be found at http://mayocl.in/1mtmR63. In person or virtual appointments can be quite helpful.

Also he Carcinoid Cancer Foundation has a website with NET specialists throughout the world. Here is the list,
--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Did you personally get 2nd and 3rd opinions, @t26