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Recurrence in Liver after Whipple

Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (48)

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I know this is a bit of an older thread, but for those who had metastasis to the liver, what was the grade of your tumors? I just had a distal pancreatectomy and splenectomy. They also found 3 of 10 lymph nodes that were NETs. Because my tumors are grade 2 (with an 8 and 10 KI-67) both my surgical oncologist and my medical oncologist think that I probably won’t have any other metastasis. After reading so many of these posts about PNETs going to the liver, I am becoming a bit less optimistic than they are. I have an appointment today where they will decide whether to do adjuvant therapy or just watch and wait. Thinking about what questions I might want to ask today.

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Replies to "I know this is a bit of an older thread, but for those who had metastasis..."

Ask what are the options are and pro/cons for each choice. If they are not NET specialists, possibly get a second opinion from one? Just my thoughts.

I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors. Ki-67 was 2.3 and 4.68.
Surgeries were in 2015 and 2017 and developed metastasis to liver in 2023. I would recommend being your own advocate and asking what they will do to monitor for metastasis going forward. I have been monitored, on average, every 6 months since 2017 @ Mayo and closely monitored for metastasis and I was always informed of the monitoring plan and findings. Please let me know if I can help further. Best wishes!